Posted June 26, 2013
A local girl with spina bifida and hydrocephalus led a walk Sunday evening to aid the fight against the condition that she is afflicted with.
Emily Beauchamp, 9, and her family led “Emily’s Walk” through King’s Navy Yard Park with the proceeds benefitting the Spina Bifida and Hydrocephalus (SB & H) Association of Ontario.
“Emily is very excited this year,” said her mother Janice. “She loves seeing her family and friends come out and support her.”
June is Spina Bifida Awareness month and also the month Emily was born with the condition. It was frightening for Janice and husband Kelly to find out what their daughter had.
“It was very scary for us,” said Janice. “We had no idea what that was. We were very grateful to have had somewhere to turn to in time of crisis and uncertainty. The SB & H Association has been a constant resource and foundation of support. It is important to give back.”
Janice said the walk is growing every year with over 30 participants taking part this year. The walk usually raises about $300 but she expected to surpass that this year.
“Emily is a happy, loving child but will face many challenges in her lifetime,” said Janice. “It gives us hope to know that SB & H will be there every step of the way.”
Janice added their family wants to ensure that treatment options are available for those with spina bifida and hydrocephalus to enhance their quality of life.